LCN Attends Aerodigestive Society’s 2025 Conference


Laryngeal Cleft Network attended the Aerodigestive Society’s 2025 Conference in Nashville Sept. 4 - 6, 2025.

LCN Co-Founders Carolyn Schultz and Deb Bachman introduced our organization to medical providers and shared our programs and resources that benefit families. They also learned ways to support the many providers that care for children born with a laryngeal cleft. 

In addition, Carolyn and Deb were invited to share their parent perspective as part of a panel discussion on severe laryngeal clefts. Carolyn and Deb co-founded LCN in 2024 after struggling for over two decades each to help their sons Theo (type 3) and Markus (type 4). Participating in the discussion and being part of the solution was a beautiful, full-circle moment for them both.

LCN also participated in a care coordinator session, where Deb presented an overview of our resources. We learned the coordinators at the various aerodigestive centers across the United States are working hard to improve patient/family experiences for children born with a laryngeal cleft, and LCN is exploring ways to support these coordinators in their efforts.

 

In Appreciation

Aerodigestive Society

We extend our sincere appreciation to the board, committees, and all members of the Aerodigestive Society. We are grateful to you all for working hard to improve life for children born with this birth defect. We appreciate being able to introduce LCN to your members, and we welcome any opportunities to support you in your efforts. Thanks for all you do!

 

Brands X Steir

We’d like to publicly recognize graphic designer and laryngeal cleft dad Marc Steir, who generously designed and created two important marketing pieces for the conference: a 7' by 3' retractable banner, as well as a trifold brochure.

Not only were the pieces beautifully done, but Marc was also great to work with. We highly recommend him. Thank you, Marc!

 

Parent Volunteers

We are incredibly grateful to two parent volunteers – Laura and Kristin – who drove many hours to help us at the conference. It was great to meet them in person, and they were so helpful staffing the table and helping out with a variety of tasks. Plus, they were fun to hang out with! Thank you, Laura and Kristin!

 

Our Incredible Donors

And last, but not least, we deeply appreciate the donors that made our attendance possible. This conference was the first step in collaborating with providers to help improve life for children with a laryngeal cleft, and we could not have done it without our generous donor support. Donors, you provide the foundation for our work, and we can’t thank you enough!

 

Together, we can close the gap!

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