Journeys

They Matter

Inspirational quote on a navy background with white text. Reads: "One day you will tell your story of how you’ve overcome what you’re going through now, and it will become part of someone else’s survival guide." - Brene Brown.

For babies born with a laryngeal cleft, it’s often a journey to get diagnosed and receive effective treatment. It’s common for babies to remain undiagnosed - or misdiagnosed - for months and years since these clefts are hidden and relatively unknown by most people. Even after diagnosis, it’s often difficult to treat this birth defect.

By sharing journeys, families and providers can learn more about how to quickly diagnose and effectively treat laryngeal clefts. Sharing journeys also provides hope to families across the globe.

Special thanks to the families willing to share their journey on these pages.