What to include in a written story:

• • symptoms, diagnosis, and treatments

  • general location (state, province, or country) where the patient was born and received care

  • any other details that feel important

  • up to 8 images

  • Anonymous submissions are allowed.

Video story guidelines:

• Feel free to share your name, child's cleft severity/type, and general location.

• Remain anonymous by filming non-identifying footage, then narrate in your own voice or send a script for captions.

• Speak on anything about your journey that resonates with you. Possible ideas:

  • • The hardest part of our laryngeal cleft journey was…

    • Living with a laryngeal cleft has taught me…

    • Our road to diagnosis was difficult because…

    • One thing I'd suggest to providers, based on our experience, is…

    • For families new to this diagnosis, my advice is…

    • The person who has made the biggest difference in our journey is…

    • Looking back, I wish I had known that…

    • If I could do things differently, I would have…

    • One thing that surprised me about our laryngeal cleft journey was…

    • Something that made our journey easier was…

    • One thing our medical team did really well was…

    • A moment we celebrated along the way was…

    • Something that makes our child who they are, beyond their diagnosis, is…

    • Connecting with other laryngeal cleft families meant…

    • The biggest misconception about laryngeal cleft is…