What We Do

We work to improve the lives of people born with a laryngeal cleft.

We do this through our:

  • Website, which provides accurate and up-to-date information.

  • Programs, which support parents, medical providers, and ultimately, the patients.

  • Journeys, which show the world what it’s really like to live with a laryngeal cleft.

  • Awareness efforts, which help educate families, providers, and the general public.

Because our kids, and those yet to come, deserve the chance to thrive.

Our Vision

We dream of the day laryngeal clefts no longer exist.

Our Mission

LCN promotes awareness, early diagnosis, and effective treatment of laryngeal clefts.

Our Guiding Principles

Patient-Focused - Improving patients’ lives is our top priority.

Independent - We are an independent group, not affiliated with any specific provider, hospital, or institution.

Parent-Supporting - We believe validating and supporting parents is crucial to patient health.

Provider-Supporting - We promote awareness and access to information for health care providers.