What We Do

We bring the entire laryngeal cleft community together to close the gap.

We do this through our:

  • Website, which serves as a hub for our community to share and connect.

  • Programs, which support parents, medical providers, and ultimately, the kids.

  • Journeys, which show the world what it’s really like to live with a laryngeal cleft.

  • Information, which helps educate and will continue to grow as scientific knowledge advances.

  • Efforts, which are just beginning and will expand and evolve over time.

Because our kids, and those yet to come, deserve the chance to thrive.

Our Vision

We dream of the day laryngeal clefts no longer exist.

Our Mission

LCN promotes awareness, early diagnosis, and effective treatment of laryngeal clefts.

Our Guiding Principles

Patient-Focused - Improving patients’ lives is our top priority.

Independent - We are an independent group, not affiliated with any specific provider, hospital, or institution.

Parent-Supporting - We believe validating and supporting parents is crucial to patient health.

Provider-Supporting - We promote awareness and access to information for health care providers.