Family Resources
Parents
Coping with Laryngomalacia provides support, strength, and education for families coping with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia.
Fiona’s Hope is a nonprofit organization formed to address the comfort needs of families of hospitalized children during prolonged or unexpected hospital stays. Fiona’s Hope does this by spreading hope through the little comforts of home with Fiona’s Hope Totes, remembering heaven’s newest angels through Fiona’s Hope Memorials, and providing support by connecting with families through personal experience.
Kangaroo Kids has developed a medical binder to assist parents in keeping a child’s medical information in one place.
Laryngeal Cleft Support Groups
Laryngeal Cleft Network Community
LCN’s private Facebook group is open to patients, parents, family members, medical providers, and anyone interested in learning about laryngeal clefts. The group encourages discussion among all community stakeholders to ultimately improve the lives of people born with this birth defect.
This private Facebook group is open to patients and parents. The group is a good resource for learning more from other families.
UK WhatsApp Group
This private group is open to UK parents. Submit this form and LCN will pass on your information to the facilitator, who will add you to the group.