Announcement

Announcement
Written By Carolyn Schultz

The Living Rare Study

The Living Rare Study will transform patient experience data into a unified voice that can drive solutions, empower advocates, and strengthen community.

Registration is now open for the Living Rare Study, the first large-scale study in the United States to track the evolving experiences of thousands of individuals and caregivers impacted by rare disorders. This study will be hosted on NORD’s IAMRARE platform.

Carolyn Schultz
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