Markus was born with a type 4 laryngeal cleft. He has had multiple surgeries, including a thoracotomy the day he was born, a lung removal in high school, and an open repair for a tracheoesophageal fistula in college. He had a trach for over eight years, a second trach for 40 days, and is J-tube dependent. His laryngeal cleft journey has taken him to multiple states across the country for treatment. 

It was not until 2022 that he met three others born with a laryngeal cleft. “I didn’t know anyone else who had my condition. I felt alone. I am forever thankful for connecting with these individuals,” he shared. Markus’ hope for being on the Patient Advisory Committee is to help connect patients and families and to share his patient perspective and insights with medical providers. He also aspires to be a voice of hope for those seeking answers on their own journeys. He wants others to know that laryngeal clefts can be addressed and managed.

Markus currently works full-time as an accountant. He enjoys spending time with family, friends, and his dog, Buddy. His hobbies include jigsaw puzzles, reading, playing games, bowling, outdoor activities, photography, and anything related to cars.