Freya

This trip was a whirlwind and our quickest medical trip to date. We were devastated to find out we needed to return to Boston just two months after Freya’s April visit. Freya is 4 years old and learning of a new congenital birth defect was a huge shock. 

The trip was also filled with delays every step of the way. Surgery was delayed due to a glitch in submitting Freya's prior authorization. Discharge was delayed for unknown reasons.Our flights were delayed due to high traffic and bad weather in the East Coast.

With all that being said, our sweet braved another surgery like the warrior she is. Her resilience and ability to adapt with everything that is thrown at us is remarkable.

LNC has been an incredible asset to my family during this time. Freya was born into the congenital heart disease world and was diagnosed with the laryngeal cleft type 1 this past April. For us, it was like starting all over in the medical world. 

LNC brought tremendous support with not only resources to our family, but also emotional and educational support. I am beyond thankful to have found this community and cannot wait to become a more active member to help spread awareness.